Acknowledgements and sources

GIS Commons was developed by Danielle Boyce, a member of the board at GeOALS. The sources below inform the site; linked maps, videos and stories retain their original authorship and credits.

GeoALS

Pat Dolan founded GeoALS and the ALS Geospatial Hub. GeoALS maps are built by the Mappers, a volunteer group of GIS professionals, ALS researchers and advocates, listed on the ALS Geospatial Hub. To learn about GeoALS, its history and its people, visit the GeoALS website.

Web sites used in preparing this site

GeoALS and its tools

• GeoALS, Our work, Blog
• ALS Geospatial Hub
• ALS Geospatial Hub YouTube channel
• Patterns of Care in the U.S. story map
• WHO GIS Centre for Health webinar page

Esri

• ArcNews, "When Lived Experience Can Help Others"
• Using GIS to Elevate Clinic Quality and Improve Care for ALS / MND Patients
• Esri Technology Used By ALS Therapy Development Institute to Map Clinical Trials
• Esri Nonprofit Program eligibility
• Esri Community training posts

Standards

• OHDSI GIS working group
• ECTO, ENVO, Mondo, HPO
• GA4GH Phenopackets, Beacon v2

Environmental examples

• Selected content from the exploratory workbook ALS_exposures_mechanism_prevention_standards.xlsx, prepared 10 November 2026, with primary references and source-row provenance
• Official environmental data sources and their linkage limits

Other

• ALS Association, ALS Global Clinic Locator
• ALS Network profile of Pat Dolan
• HHS de-identification guidance